We describe the frequency and severity of sleep problems and fatigue and assess the extent of their association with measured glomerular filtration rate mgfr and healthrelated quality of life hrqol in 301 participants of the chronic kidney disease in children cohort. Further validation of the fatigue symptom inventory. The pedsql multidimensional fatigue scale was designed as a child selfreport and parent proxyreport generic symptomspecific instrument to measure fatigue in pediatric patients. Essentially, the fss consists of answering a short questionaire that requires the subject to rate his or her own level of fatigue. Circle the one number that describes how, during the past 24 hours, fatigue has interfered with your. The aim of this study was to assess internal consistency and construct validity knowngroups validity and to provide dutch norm data for the dutch pediatric quality of life inventory multidimensional fatigue scale for young adults ages 1830 years. Healthrelated quality of life was assessed using the pediatric quality of life inventory pedsql 4. Results of the confirmatory factor analyses for a fivefactor solution model 1, a fourfactor solution with the scales for general and physical fatigue combined model 2 and a fourfactor solution with the scale for general fatigue excluded. Though numerous versions of the pedsql have been developed as measures of healthrelated quality of life in pediatric patient populations, the pedsql. Several positively phrased items are reversescored. Core scales, multidimensional fatigue scale, and cancer module.
Higher total scores correspond with more acute levels of fatigue. Modified fatigue impact scale mfis fatigue is a feeling of physical tiredness and lack of energy that many people experience from time to time. The multidimensional fatigue inventory 319 table i. Fatigue severity scale the fatigue severity scale fss is designed to differentiate fatigue from clinical depression, since both share some of the same symptoms. The pedsql multidimensional fatigue scale was designed as a child self. The longterm safety and efficacy of vestronidase alfa. The pedsql multidimensional fatigue scale in pediatric. Please give an answer to each question, even if you do not have any complaints at the moment. The multidimensional fatigue inventory mfi psychometric.
This is a sample version of the multidimensional atigue. Multidimensional fatigue inventory and postpolio syndrome. Fatigue assessment scale fas below are a number of questions about possible complaints. Safety, tolerability, pharmacokinetics, pharmacodynamics, and. Varni, who gave us permission to develop the japaneselanguage version of the pedsql multidimensional fatigue scale and provided great support during the process of development. Moffitt cancer center and university of south florida the fatigue symptom inventory fsi, is a 14item selfreport measure designed to assess the. The aim of this questionnaire is to find out how you experience your complaints. Multidimensional fatigue inventory mfi description. Among the main factors that affect patients quality of life, fatigue is a significant symptom experienced by children during treatment.
Maf multidimensional assessment of fatigue acronymattic. Pedsql tm multidimensional fatigue scale in sickle cell. The 18item pediatric quality of life inventory multidimensional fatigue scale adult report, standard version pedsql 47 encompasses three. Pedsql multidimensional fatigue scale in sickle cell disease. Consists of nine items that look at fatigue in the past that are rated on a 0 10 numeric rating scale where 0 is no fatigue or does not interfere and 10 is bad fatigue or completely interferes with activitywork. Sleep and fatigue symptoms in children and adolescents with. There is a need for validated questionnaires to assess fatigue in pps for use in clinical practice and research. Though numerous versions of the pedsql have been developed as measures of healthrelated quality of life in pediatric patient populations, the pedsql multidimensional fatigue scale is the first of. May 2017 page 1 of 146 pediatric quality of life inventory pedsql scaling and scoring of the ppeeddiiaattrriicc qquuaalliittyy ooff lliiffee iinnvveennttoorryy. The validity of the pedsql multidimensional fatigue scale was confirmed through hypothesized intercorrelations with dimensions of generic and rheumatologyspecific hrqol. A previous publication described the initial development, factor analysis, and psychometric evaluation of the scale.
Qualityoflife measures in chronic diseases of childhood. Additional key efficacy assessments included mobility as assessed with the sixminute walk test 6mwt, fatigue using the pediatric quality of life pedsql multidimensional fatigue scale, presence and severity of hepatosplenomegaly, and a composite multidomain responder index mdri. Reliability and validity of the pedsql multidimensional. We greatly appreciate the children and parents who participated in this study and the teachers who supported our research. Outcomes were age specific where appropriate, and the. Further validation of the multidimensional fatigue symptom. The objective of the present study was to determine the feasibility, reliability, and validity of the pedsql multidimensional fatigue scale in type 1. Pedsql tm multidimensional fatigue scale in sickle cell disease. Brief fatigue inventory index rehabmeasures database. The following ten statements refer to how you usually feel. The pedsql multidimensional fatigue scale in type 1. Pedsql officially distributed by mapi research trust.
High validity and reliability of the pedsql multidimensional fatigue scale for brazilian children with cancer article pdf available in journal of pediatric oncology nursing november 2014 with. The pedsql multidimensional fatigue scale mfs, 34 dutch language version, 35, 36 was used to measure fatigue. Article information, pdf download for high validity and reliability of the. I have used the pedsql multidimensional fatigue scale version self and proxy in my ph. Fatigue is a common symptom in postpolio syndrome pps and can have a substantial impact on patients. A commonly used instrument to assess the multidimensional aspects of fatigue in patients with pd is the multidimensional fatigue inventory mfi. The pedsql multidimensional fatigue scale was designed as a generic symptomspecific instrument to measure fatigue in pediatric patients ages 218. The pedsql multidimensional fatigue scale was able to distinguish between. The pedsql multidimensional fatigue scale is a specific module of the pedsql.
Cardiac and cerebral palsy modules, as well as the generic pedsql multidimensional fatigue scale, pediatric pain questionnaire, family impact module and healthcare satisfaction module. Patient health questionnaire9 phq9 and generalized anxiety. Feasibility, reliability and validity in a university student population. The pedsql multidimensional fatigue scale distinguished between healthy children and children with rheumatic diseases as a group, and was associated with greater disease severity. Sleep and fatigue symptoms in children and adolescents. Reliability and structural validity of the multidimensional. We describe the frequency and severity of sleep problems and fatigue and assess the extent of their association with measured glomerular filtration rate mgfr and healthrelated quality of life hrqol in 301 participants of the. Information about the fatigue symptom inventory fsi and the multidimensional fatigue symptom inventory mfsi prepared by kevin d. Normal work includes both work outside the home and daily chores 012345678 910 c. Department of pediatrics, vu university medical center amsterdam, pk 4x 033, p.
This is a sample version of the multidimensional fatigue. Scoring respondents use a scale ranging from 1 to 7 to indicate how aptly certain statements regarding fatigue represent their experiences. Scale descriptives for pedsql multidimensional fatigue scale. The pedsql multidimensional fatigue scale was designed to measure fatigue in pediatric patients. The multidimensional fatigue symptom inventory mfsi, is an 83item selfreport measure designed to assess the principal manifestations of fatigue. Pediatric quality of life inventory pedsql multidimensional. The pedsql pediatric quality of life inventory is a modular instrument designed to measure health. The pedsql multidimensional fatigue scale was designed as a generic symptomspecific instrument to measure fatigue in pediatric patients. Whereas there is no gold standard fatigue instrument for rheumatologic conditions, the developers of this instrument description chose the multidimensional assessment of fatigue maf because of its relatively low patient burden and its potential clinical utility. The multidimensional fatigue inventory mfi20 contain 20 items that measure the previously mentioned dimension of fatigue. Assessment of fatigue in pediatric patients with short stature utilizing the pedsql multidimensional fatigue scale. The objective of the present study was to determine the feasibility, reliability, and validity of the pedsql multidimensional fatigue scale in type 1 diabetes. The mfis is a modified form of the fatigue impact scale fisk et al, 1994b based on items derived from interviews with ms patients concerning how fatigue impacts their lives. Pediatric quality of life inventory multidimensional fatigue scale.
The msqli forms a comprehensive but relatively brief assessment package consisting of 8 items organized into 10 scales. The original american version demonstrated adequate reliability and validity 14, 9. Already a subscriber login subscribe to proqolid to access to full information. Dec 01, 2004 the validity of the pedsql multidimensional fatigue scale was confirmed through hypothesized intercorrelations with dimensions of generic and rheumatologyspecific hrqol. A selfreport instrument consisting of 20item devised to measure fatigue, covering the dimensions of general fatigue, physical fatigue, mental fatigue, reduced motivation and reduced activity. Jan 01, 2014 read pedsql multidimensional fatigue scale in sickle cell disease. Access to advanced descriptions of clinical outcome assessments coas. The pedsql multidimensional fatigue scale in type 1 diabetes.
Who has used the pedsql multidimensional fatigue scale. Parentchild concordance for total scores was poor to good iccs 0. Per statement you can choose one out of five answer categories, varying from never to always. High validity and reliability of the pedsql multidimensional. Pedsql multidimensional fatigue scale in sickle cell. The pedsql has demonstrated reliability, validity, sensitivity and responsiveness for child self report for ages 518 years and parent proxy report for ages 218 years.
The aim with this study was to assess the validity and reliability of the swedish version of multidimensional fatigue inventory mfi20 in patients with pps using the rasch model. There are many instruments that assess fatigue that have been used in research. The pedsql multidimensional fatigue scale evidenced minimal missing responses, achieved excellent reliability for the total scale score alpha 0. Please circle the answer to each question that is applicable to you. The pedsql multidimensional fatigue scale in young adults. But people who have medical conditions like ms experience stronger feelings of fatigue more often and with greater impact than others. These questions are about fatigue and the effect of fatigue on your activities. The mfi is a selfreport questionnaire that assesses five dimensions of fatigue i. Neuroimmunoendocrine trajectories and the response to stress and fatigue in. Read pedsql multidimensional fatigue scale in sickle cell disease.
Despite the high incidence, there has been no validated scale to evaluate fatigue in children with cancer in. Nov 21, 2014 high validity and reliability of the pedsql multidimensional fatigue scale for brazilian children with cancer article pdf available in journal of pediatric oncology nursing november 2014 with. Items are rated on a 5point scale indicating how true each statement was for the respondent during the last week 0not at all. A multigroup confirmatory factor analysis approach utilizing the pedsql multidimensional fatigue scale. For each of the following questions, circle the number that most closely indicates how you have been feeling during the past week. Though numerous versions of the pedsql have been developed as measures of healthrelated quality of life in pediatric patient populations, the pedsql multidimensional fatigue scale is the first of these scales to deal specifically with subjective experiences of fatigue. The study form has a registered trademark and copies are available at the academic medical centre. Nov 20, 2007 the pedsql pediatric quality of life inventory is a modular instrument designed to measure healthrelated quality of life hrqol and diseasespecific symptoms in children and adolescents ages 218. The pedsql assesses the childs quality of life over the last month. Multidimensional assessment of fatigue maf scale instructions.
Bibliographic references of the original questionnaire. For example, suppose you really like to sleep late in the mornings. The multidimensional assessment of fatigue maf scale is a revision of the piper fatigue scale developed for use among patients with rheumatoid arthritis belza, 1995. Factorial invariance of pediatric patient selfreported fatigue across age and gender.
Stability and repeatability of the distress thermometer dt plos. This instrument takes about 5 to 10 minutes to complete. The maf was originally developed in rheumatoid arthritis but has also been tested in hiv, multiple sclerosis, coronary heart disease, cancer, pulmonary disease, postpartum women and healthy controls. Use adobe acrobat reader version 10 or higher for the best experience. Multidimensional fatigue symptom inventory mfsi, he multidimensional fatigue symptom inventory mfsi, is an 83item selfreport measure designed to assess the principal manifestations of fatigue. The pediatric quality of life inventory pedsql tm multidimensional fatigue scale was designed by varni and colleagues to measure fatigue in children. The recently developed 18item pedsql multidimensional fatigue scale was designed to measure fatigue in pediatric patients and comprises the general fatigue scale 6 items, sleeprest fatigue scale 6 items, and cognitive fatigue scale 6 items. Following is a list of statements that describe the effects of. Self and proxyreport versions of these questionnaires were completed when possible. Each item ask the individuals to mark on a 15 or 17point rating scale to what extent the statement is true and applies to them or not true.
This instrument provides an assessment of the effects of fatigue in terms of physical, cognitive, and psychosocial functioning. The pedsql multidimensional fatigue scale in pediatric rheumatology. Multidimensional fatigue inventory20 or mfi is a 20item scale designed to evaluate five dimensions of fatigue. Fatigue is a common symptom in pediatric health conditions and is associated with poorer hrqol 18. Generic core scales, multidimensional fatigue scale, and cancer module. It was originally devised for people with multiple sclerosis or systemic lupus erythematosus1. May 2017 page 6 of 146 the parent report for toddlers pages 24 of the peeddssqqllttmm 4400 nggeen eerriicc sccoorre ssccaallees is composed of 21 items comprising 4 dimensions. An electronic version of this publication, in adobe acrobat format, is available for downloading free of. Since a sizeable number of pediatric patients prefer to remain with their pediatric providers after age 18, the objective of the present study was to determine the feasibility, reliability, and. Perceived fatigue was assessed using the dutch version 12 of the 18item pediatric quality of life inventory multidimensional fatigue scale pedsql mfs 14, according to best evidence 24.
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